Tuesday, June 21, 2016

Asperger's Doesn't Take a Vacation

It's been 3 years since we took a real vacation (and not just a long weekend away).  And we're just getting by financially. So when we first began to discuss the prospect of a week away at the shore, my knee jerk reaction was, "No - why should we pay all of that money to just deal with meltdowns at someone else's vacation home."

But that wasn't fair to the other kids, or to us.  So off we went on vacation.

The first day or two went actually pretty well.  There was a lot of new an distracting activities.  And lots of FOOD.  Food, being a "prefered activity", ended up being a great time for T and for the rest of us. But as you might have guessed, there were meltdowns, tirades, threats, and slamming doors.  Change in plans because of weather?  Outburst.  Ran out of a preferred snack food?  Outburst.  Refusing to order him two adult portions from the menu?  Outburst.

Still, the brief periods of time when the kids were splashing in the waves, gave us a bit of respite.

Toes in the sand.  Breathing in the fresh salt sea air.  Breathe in.  Breathe out.

Friday, June 3, 2016

Let's all sit around and talk about you...

...like you're not in the room.
We're going to list all of your issues, problems, annoyances, breakdowns, mistakes, angry outbursts, physical aggression.
And we're not just going to do it once.
Let's do it once each....

  • ...for the developmental pediatrician
  • ...for the therapist
  • ...for the intake specialist
  • ...for the functional behavior analysis
  • ...for the psychologist
  • ...for the psychiatrist
I honestly don't know how T can handle it all.  I keep imagining if I had to sit in a room with the people I am supposed to love most - and who are supposed to love me most - and listen to them list my shortcomings and needs over, and over, and over, and over, and over again.

If you're reading this and you're a member of a group or organization devoted to helping kids on the spectrum, please help.  If you're group requires clients to go through these kinds of interviews with countless members of your group...well, maybe your team can do ONE interview?  Or at the least give kiddo something to do elsewhere during these parts of the interview?